Put God’s love in action

I’m going to let you in on a little secret—church is something that the parents of kids with special needs dread. We are an exhausted group of people, and making it to church on Sunday is hard in big ways. It is also hard for our kids, many of whose needs result in difficult and loud behaviors during church that draw lots of unwanted attention. They’re not trying to be disruptive or naughty; often their bodies and brains can’t process the sights, sounds, and structure of a service.

But we remember Christ’s words, “Let the little children come to me” in Matthew, and we understand the importance of bringing our kids to Jesus’ feet to hear about his love and forgiveness. Sometimes we are also motivated by our desperation to see other adults during the week that aren’t our kids’ therapists. Sometimes we even dare to hope that we will be able to distract our kids long enough to make it through singing just one of our favorite hymns.

It’s hard work—physically and emotionally—for us and for our children. Here are some things for the church to think through when it comes to being the hands and feet of Jesus so that families can receive rest from the one who welcomes those who are “weary and burdened.”

Special needs present themselves in different ways. Children may have autism, PTSD, Sensory Processing Disorder, or ADHD—all diagnoses that don’t affect a child’s physical appearance. However, these are very real and challenging things to live with, and they affect a child’s brain and behavior in deep, lifelong ways. Treat the children and their families in your congregation with the kindness and gentleness Paul speaks of in Galatians. There may be more to a child’s behavior that you simply do not know about.

Provide opportunities for Dad, Mom, and siblings to worship and learn. This can be as simple as providing a staffed nursery or special helper in the pews to give families aid and respite so that everyone is given a chance to learn, pray, and sing during worship.

Be advocates for struggling families. They’re probably used to stares or unkind comments in the grocery store, doctor’s office, or park. Let your church be a place where these families are supported and encouraged. If you see others making them feel unwelcome or unwanted, reach out to encourage the hurting family—and remind others that God calls us to carry each other’s burdens in love. Notice the times when their child is behaving well or having a successful day. Tell them about the amazing qualities you see in their child.

Equip your Sunday school, vacation Bible school, and other youth programs to accommodate participation from children with special needs. Make sure that the parents of these children feel welcome and safe dropping their child off by enlisting the help of their child’s therapists to make sure that you have a team in place to make the environment safe and successful. Most therapists are thrilled to help you make your program a better place for a hurting child. No one should be excluded from opportunities to learn about Jesus and enjoy fellowship with peers.

Children with special needs call for special care. And it brings special blessings for those of us who care for them. We get to see these children held tightly in the arms of Jesus and know—we had the joy of helping make it happen. Help your congregation experience this joyful blessing. Put God’s love in action.

Carly Seifert and her husband, Joel, live in Bozeman, Mont. Joel is the pastor of Shining Mountains Lutheran Church. In addition to teaching piano, Carly is a freelance writer. She and Joel have two children—Ella, who is seven, and Benjamin, who is three.
 

Teaching children how to respond to those with special needs

“Why does he have that chair?”

“What’s wrong with him?”

These are questions that children often ask about my son, Liam. Sometimes they ask me directly. Sometimes they ask their parents. Sometimes they yell the questions to any listening ears. Many children stop in their tracks to stare. For our family every grocery store trip, library visit, church event, or walk in the neighborhood brings us into contact with people who have questions.

People notice Liam’s chair. They notice that he cannot talk. They hear him make loud noises. They see that his body moves very differently than most. I understand their curiosity. Liam is different, and people just want to understand.

Children are honest and open in their curiosity. I appreciate that they ask questions. Certainly there are days when I want to avoid stares and questions. I want to blend in with the crowd. Yet I know that it is a great service to Liam when we use every teachable moment. If people can become comfortable with Liam and can learn to interact with him appropriately, all of our lives will be richer.

Children’s questions are often intercepted by chagrined parents. The parents apologize and pull their curious children away from Liam without allowing us to say hello or answer their questions. This leaves everyone feeling awkward.

Ironically, when I am out with only my daughters and we meet individuals with special needs, I have trouble knowing how to behave. It is so difficult! The social cues are confusing, any assumptions that I have made are usually wrong, and I overthink every word that I say. Being Liam’s mom has helped me to really think about these situations and how we can all respond better. I have found following these guidelines to be helpful as I introduce my children to someone new who has special needs:

  1. Remember that people with disabilities are people first. The disability is certainly a part of them, but it isn’t who they are. They have feelings, ideas, wishes, and hopes just like you do. I explain this to my children, and we talk about what each of my children likes, thinks, hopes, and wishes. We talk about how every person is similar in these ways even if he cannot communicate this or if she looks or moves differently.
  2. Start by smiling and saying hello. Even if your child started the interaction with a loud question, parents of children with disabilities understand that this happens. We are human. Our kids are too. Don’t lose this teachable moment because of your own embarrassment. A smile and a kind hello are so much friendlier than pulling your child away from us. Most days, we will even take a minute to explain the wheelchair to your child or to introduce Liam.
  3. Acknowledge Liam, not just his family. Liam won’t answer you. He may not even look at you, but say hello to him. Look at him. Use your regular voice. You don’t need to talk extra loudly. He is a school-aged kid, so baby talk is unnecessary. I will help you out by interpreting his response. Liam is so valuable and worthwhile, and your hello to him helps both him and me see that you know this.
  4. An “I’m not sure” is better than a wrong or made up answer. This is always the truth with kids, and it certainly applies to answering their questions about special needs. While “God made him that way” is certainly true of Liam’s inability to talk and walk, it oversimplifies Liam’s differences. It doesn’t answer the child’s questions. It is not true of why he is in a wheelchair (which is usually what kids want to know). Liam wasn’t born with a wheelchair. For a small child, an age appropriate response that might be better would be to explain that Liam’s brain doesn’t send the right messages and so his body never learned to walk or talk the way that most children do.
  5. If you and your child are talking with Liam, tell your child a few things that are similar about him and Liam. “Do you like books? Liam loves to listen to books.” This helps your child to see Liam as a little boy. Conversations like this are a great way to become Liam’s new friend. They also help your child understand that Liam is similar to him in so many ways.
  6. Examine your own responses. When I interact with others who have special needs, I am always worried about doing or saying the wrong thing. My kids pick up on this no matter how kind my words are. The easiest way I’ve found to overcome my own fears has been to get to know real people with special needs. Every single person is different, and my comfort with differences grows as I get used to being with all sorts of people.
  7. Reassure your child. Recently a girl told my daughter, “Your brother is just creepy.” What people don’t understand feels scary to them. It may seem obvious, but children need to be reassured that children like Liam are not scary. They are actually very much like every other child. They like to play. They want to have friends. They want to be loved. Explain to your child that children can be born disabled or become disabled from an accident. You cannot catch disability from another child. Being friends with them is perfectly safe.
  8. Do not reward or congratulate your child for being friends with another child who has special needs. Being a friend to someone with special needs is not a charitable act or an act of kindness. It is a mutually beneficial relationship and should be treated as such. Typical peers often learn and grow through such friendships in huge ways.

“Be kind to one another, tender-hearted, forgiving each other, just as God in Christ also has forgiven you” (Ephesians 4:32). Helping your child lovingly interact with others is a natural part of Christian parenting. In his explanation to the 8th commandment Luther says that we are to “take [our neighbor’s] words and actions in the kindest possible way.” If each of us strives to approach situations with this attitude, we can truly become comfortable with interactions involving all kinds of people. As you encounter children with special needs, imagine how you would feel and how you would want to be treated.

Just as your child and my Liam have many things in common, so do you and I. We are parents doing our best to nurture and love the children that the Lord has entrusted to us—probably more alike than different.

Wendy Heyn’s second child, Liam, was born with a rare genetic neurodevelopmental disorder known as MECP2 duplication syndrome.


Advice from Liam’s big sister, Sophia

Sophia Heyn is a creative 10-year-old who enjoys reading historical fiction and acting out the scenarios that she learns about from Laura Ingalls Wilder, the American Girl series, and other beloved books. Because her father was born and raised in Germany, she has traveled to Europe many times, and this gives her a different perspective on the world. Perhaps having a brother with a genetic disorder that causes severe cognitive and physical disabilities has also contributed to the mature way that she carries herself.

I sat down with Sophia over a cup of hot chocolate to hear her perspective on how other children should treat her brother.

Q: What do you like to do with Liam?

Sophia: I play Thomas [the Tank Engine] with him and help him get a drink. He likes me to set up his Thomas cards so that he can wreck them.

Q: When someone meets Liam for the first time, what kind of questions do they ask?

Sophia: Some people ask, “What’s wrong with him?”

Q: How do you answer when people ask that?

Sophia: I tell them that he has a disability and his brain doesn’t work the same way that ours does. I like when they ask questions. Some people just stare, but I think it’s better to ask questions.

Q: How does it make you feel when people stare or treat Liam differently?

Sophia: I don’t like it.

Q: What would you like to say when that happens?

Sophia: It’s okay if you have questions.

Sophia encourages people of all ages to talk with her family about Liam. Her love for her brother shines through as she talks about him, as does her sense of protection for him. Like most big sisters, Sophia wants children to be kind to her brother. As you help your children learn how to respond to those with special needs, consider sharing Sophia’s thoughts with them.

Nicole Balza

Defining respect

People want respect, and yet it looks different for different people. We think we deserve respect, and yet Jesus, who truly deserves our respect, never demanded respect from anyone. I am realizing that I use the word “respect” often without much thought to what it really means.

Some very wise women in my circle of friends describe respect this way:

“I believe that respect is attached to value. If you can understand that someone is valuable, whether you agree with them or not, you hold them in high enough regard to allow them to be who they are.”

“Fearless submission. Honoring others above one’s self. Knowing you do not have to protect and defend your ‘self’ but rather live outrageously free in relationship with others because God is on his throne. Respect is not trying to control the outcome but rather letting it unfold.”

“Respect is love in plain clothes.”

“Recognizing the value God placed on another person because of his Son’s life and sacrifice (Jesus died for that person) and deferring to them because of their value to God.”

“I think respect grows from the seed of humility that you plant in his light and care for lovingly.”

Pretty profound if you ask me.

So how do we teach these concepts to our children? Follow Jesus’ example. Model giving respect to others. Jesus showed respect to those he encountered—from the woman at the well to doubting Thomas.

Paul tells us, “Submit to one another out of reverence for Christ.” What does submitting have to do with respect? Re-read the answers my lovely friends shared about what respect means. It is submitting. It is putting others ahead of ourselves. It is not demanding. It is loving.

Show your children what respect is by respecting them, by respecting your spouse, by respecting our leaders, by respecting the referees at their games. Showing them how to respect others melds into showing them how to love—even the unlovable, even our enemies, even if we think it’s not deserved, even people with whom we disagree and even those who disagree with us. Respect can and does go a long way.

Our children are watching

“Each of you must respect his mother and father” (Leviticus 19:3). This is undoubtedly a direct command from God. The explanation to the Fourth Commandment says, “We should fear and love God that we do not dishonor or anger our parents and others in authority but honor, serve, and obey them and give them love and respect.” Unfortunately, we are born into the world with a sinful nature, and showing respect does not come naturally. As parents, this means that we need to teach our children how to show respect.

We don’t have to look far to find examples of disrespect. How often are grade-school gyms filled with parents and coaches who show disrespect for authority by disagreeing with every call made by the official? And what about political campaigns? Respect is replaced with mudslinging, lies, and rudeness.

How easy is it to think we have the right to talk poorly about co-workers, second-guess our bosses, lash out at a nearby driver, be short-tempered with the waitress who isn’t meeting our expectations, put devices before a child or spouse, or speak rudely to that person who just can’t see things from our perspective? Unfortunately, these examples all came to mind because at one time or another, I was guilty of them myself.

The reality is that our children are watching. I was stopped dead in my tracks one night at our family campfire. While making s’mores, the inevitable happened. My five-year-old son dropped his marshmallow into the fire. With great disgust he shouted, “C’mon! You’ve got to be kidding me!” My wife’s jaw dropped. Sadly, this didn’t sound odd to me. I had shouted the exact same words with the exact same emotion at the TV while watching a college game about an hour earlier.

More important than pointing out examples of disrespectful behavior, we can joyfully model for our children how to respect others. A great way to begin teaching the lifelong habit of respect is to teach proper manners. We can also teach our children how to respect our country and those who make it great. We should also expect our children to respect their pastors and teachers. We can do this by praying for them, speaking well of them, never questioning them in front of our children, and expecting that our children listen to them the first time.

Learning respect will not happen without a few bumps in the road. When a child shows disrespect, it is our opportunity to show love to them by holding them accountable.

Be sure to spend time with your children in his Word. Remind them of God’s love for all people. One of our family’s favorite songs states, “Red and yellow, black and white, they are precious in his sight, Jesus loves the little children of the world!” When we show respect to all of God’s creation, we show honor to him.

Aaron Bauer and his wife, Sara, have four children between the ages of four and eleven. The couple has been teaching Love and Logic parenting classes for the past eight years. Aaron teaches at Garden Homes, Milwaukee, Wis. 

“I get no respect”

Sometimes I feel like that old comedian who after every joke tugged at his collar and whined, “I tell ya, I get no respect.”

My boys don’t always show respect. And that’s a problem—not just with me, but with God who commands, “Honor your father and your mother . . . ” (Exodus 20:12) and “You must respect [your] mother and father” (Leviticus 19:3).

So, if I’m going to be a faithful and loving parent, I’m going to have to teach my kids to show me respect. But that’s hard, because my sinful anger gets in the way whenever I feel disrespected. So before I consider my relationship with my kids, I need to consider my relationship to God. How well do I respect him?

If I’m honest, I have to admit that I disrespect God every time I sin—even when that sin is prompted by my boys’ disrespect. I in essence say to God what my boys say to me, “What I want is more important than what you want. I choose to make myself the authority instead of you.”

How does God handle it? He doesn’t allow me to talk back to him without consequences—a fight in the family, a greater struggle in our home. He teaches me that it’s not okay to do things my way instead of his way in love. “The Lord disciplines those he loves, and he punishes everyone he accepts as a son” (Hebrews 12:6).

So, too, I won’t allow my boys to talk back to me without consequences. I will discipline them (with great patience and careful instruction) when they are disrespectful.

But that’s not all God does. He doesn’t just discipline me with his law. He also earns my respect and—even more—he earns my love by his gospel. He sent his own Son to face the disrespect and torture of sinful men, to be crucified on a cross for me. And now I am completely forgiven for my disrespectful attitude and for every sin that has resulted from it. This moves me to love and respect God and want to live for him.

So, too, I will try to earn my boys’ respect—and their love—by showing my love for them. I will try to motivate my boys to show respect by showing them how much God loves them in Christ. And with his help, using his law and his gospel, I will learn to better respect God, and my boys will better learn to respect me—all out of love for him.


Online exclusive . . . more from Rob Guenther on this subject

I’ll admit that this article was very difficult for me to write. I don’t have the answers to this challenge. I kind of feel like a hypocrite writing it because my kids don’t always show me respect. And when they don’t, I too often lose my cool and sin against them. We’re working on it. And thank God that we have his forgiveness in Christ.

But in searching for help to write this, I bought the book Love and Respect in the Family by Dr. Emerson Eggerichs. And I think it’s very well written. It doesn’t just give practical tips for the parent/child relationship but even highlights Christ and his love for us that motivates and empowers us.

Dr. Eggerichs points out that maybe God doesn’t just bless kids with parents. Maybe sometimes he blesses parents with kids, through whom he teaches us to rely less on ourselves and our own wisdom and more on him in prayer and in his Word. It’s pushed me to pray for my boys more and has given me new insights into ways I can interact with them. I would strongly recommend that any parent struggling with the challenge of their children showing little respect would get a copy and read it (or listen to it if you’re not a reader).